Close X
Monday, November 11, 2024
ADVT 
National

Ontario To Create Clinic To Help People With EDs, Other Rare Diseases

Darpan News Desk The Canadian Press, 29 Feb, 2016 10:31 AM
    TORONTO — Ontario will set up a new clinic to diagnose and treat people with Ehlers-Danlos Syndrome, or EDS, and it could expand to help patients with other rare diseases.
     
    About one in 5,000 people in the province live with EDS, a genetically-inherited disease that includes a group of connective tissue disorders, and causes acute and chronic pain, joint dislocation and lost vision.
     
    EDS is difficult to diagnose because it affects multiple systems, such as the nervous and/or orthopedic system, skin, joints, blood vessels, and internal organs, and symptoms can vary widely in each patient.
     
    The new clinic will offer more supports for people with EDS by giving their doctors a single point of contact for information on related signs and symptoms, and to get advice from clinical experts on diagnosis and treatment options.
     
    The government says the mandate of the clinic could be expanded to support doctors who are treating people living with other rare diseases, and it will create a working group to look for ways to improve services for them.
     
    Ontario is working with British Columbia and Alberta to develop a national strategy to improve access to pharmaceuticals for rare diseases and address their high costs.

    MORE National ARTICLES

    7 Skiers Hurt In Golden, B.C. Avalanche Were On Self-Guided Trip: Industry Group

    The experienced skiers were on a slope Sunday close to Sunrise Lodge when the avalanche was triggered close to the treeline.

    7 Skiers Hurt In Golden, B.C. Avalanche Were On Self-Guided Trip: Industry Group

    Quebec Screenwriter Bernard Dansereau Alleges Claude Jutra Abused Him

    Quebec Screenwriter Bernard Dansereau Alleges Claude Jutra Abused Him
    He has told Montreal La Presse that Jutra slipped into his bed while he was sleeping one night in the early 1970s

    Quebec Screenwriter Bernard Dansereau Alleges Claude Jutra Abused Him

    'Justin Trudeau To March In Toronto's Pride Parade This Summer'

    'Justin Trudeau To March In Toronto's Pride Parade This Summer'
    Trudeau will become the first prime minister to participate in the festivities.

    'Justin Trudeau To March In Toronto's Pride Parade This Summer'

    Winnipeg Man Accused Of Sending Mail Bombs Wants Out-of-province Judge On Case

    Winnipeg Man Accused Of Sending Mail Bombs Wants Out-of-province Judge On Case
    Martin Glazer says he made the request for Guido Amsel's case because he thinks a local judge could biased.

    Winnipeg Man Accused Of Sending Mail Bombs Wants Out-of-province Judge On Case

    Defence To Present Case For Toronto Mom Cindy Ali Accused Of Murdering Disabled Daughter

    Defence To Present Case For Toronto Mom Cindy Ali Accused Of Murdering Disabled Daughter
    Jurors have heard evidence called by Crown prosecutors who argue Cindy Ali murdered her 16-year-old daughter Cynara and then spun an elaborate web of lies to cover the crime.

    Defence To Present Case For Toronto Mom Cindy Ali Accused Of Murdering Disabled Daughter

    BC Hydro Seeks Court Injunction To Remove Site C Dam Protesters

    BC Hydro says allowing protesters to continue blocking construction of the Site C dam project would cost the utility $8 million.

    BC Hydro Seeks Court Injunction To Remove Site C Dam Protesters