Close X
Wednesday, November 20, 2024
ADVT 
National

New Brunswick Will Cover Costly Drug To Treat Young Boy With Rare Disease

Darpan News Desk The Canadian Press, 23 Dec, 2015 12:21 PM
    New Brunswick's health minister says the province will provide interim coverage of a costly drug for a 10-year-old boy with a rare disease.
     
    Victor Boudreau said in a statement Wednesday that the province will pay for up to a year's worth of Vimizim to assess its effectiveness treating Morquio Syndrome.
     
    Morgan Doucet and his parents went public with an appeal for the province to cover the drug —which costs up to $200,000 per year — after their initial request was rejected.
     
    The boy's mother, Carolle Mazerolle, has said Morgan is in declining health because the disease causes an enzyme deficiency that leads to many complications including headaches, fatigue, and vomiting.
     
    Boudreau said last week he had instructed health officials to find an independent specialist to offer a second opinion about the effectiveness of the drug.
     
    He said the year's worth of medication will provide a trial period to assess its effectiveness.

    MORE National ARTICLES

    Investigator: Most of passengers on Canada boat that sank were on 1 side before wave struck

    Investigator: Most of passengers on Canada boat that sank were on 1 side before wave struck
    TOFINO, B.C. — Passengers were crowded on the left side of the top deck of a whale-watching boat when it was struck by a wave from the right side, causing the vessel to capsize and send 27 people into the water off Vancouver Island, an investigator said.

    Investigator: Most of passengers on Canada boat that sank were on 1 side before wave struck

    Trial starts for dad charged in daughter's murder after body found in suitcase

    Trial starts for dad charged in daughter's murder after body found in suitcase
    TORONTO — A trial has begun in Toronto for a father charged in the death of his daughter, whose charred body was found in a burning suitcase 21 years ago.

    Trial starts for dad charged in daughter's murder after body found in suitcase

    Trial continues for cop charged in shooting death of teen on streetcar

    Trial continues for cop charged in shooting death of teen on streetcar
    TORONTO — The trial of a Toronto police officer charged in the shooting death of a teen on an empty streetcar is set to continue today with testimony from witnesses brought by the Crown.

    Trial continues for cop charged in shooting death of teen on streetcar

    Area around Toronto's Trump Tower closed off due to cracked window

    Area around Toronto's Trump Tower closed off due to cracked window
    TORONTO — A downtown intersection will be closed for days as police investigate what appears to be a cracked window in the Trump International Hotel and Tower Toronto.

    Area around Toronto's Trump Tower closed off due to cracked window

    Former Toronto mayor Rob Ford hits 'bump' in cancer recovery: report

    Former Toronto mayor Rob Ford hits 'bump' in cancer recovery: report
    TORONTO — A Toronto radio station reports that the brother of Rob Ford says the former Toronto mayor has hit a "bump in the road" in his recovery from cancer.

    Former Toronto mayor Rob Ford hits 'bump' in cancer recovery: report

    Prime minister-designate Justin Trudeau prepares to tackle pot politics

    Prime minister-designate Justin Trudeau prepares to tackle pot politics
    OTTAWA — As Justin Trudeau prepares to tackle the politics of legalizing pot as part of his Liberal government's legislative agenda, industry experts say he will have access to a world-class marijuana framework set up under the Conservative government.

    Prime minister-designate Justin Trudeau prepares to tackle pot politics