Close X
Tuesday, November 19, 2024
ADVT 
National

New Brunswick Will Cover Costly Drug To Treat Young Boy With Rare Disease

Darpan News Desk The Canadian Press, 23 Dec, 2015 12:21 PM
    New Brunswick's health minister says the province will provide interim coverage of a costly drug for a 10-year-old boy with a rare disease.
     
    Victor Boudreau said in a statement Wednesday that the province will pay for up to a year's worth of Vimizim to assess its effectiveness treating Morquio Syndrome.
     
    Morgan Doucet and his parents went public with an appeal for the province to cover the drug —which costs up to $200,000 per year — after their initial request was rejected.
     
    The boy's mother, Carolle Mazerolle, has said Morgan is in declining health because the disease causes an enzyme deficiency that leads to many complications including headaches, fatigue, and vomiting.
     
    Boudreau said last week he had instructed health officials to find an independent specialist to offer a second opinion about the effectiveness of the drug.
     
    He said the year's worth of medication will provide a trial period to assess its effectiveness.

    MORE National ARTICLES

    Telus To Cut Workforce By 1,500 Positions In Effort To Cut Annual Costs By Up To $125 Million

    Telus To Cut Workforce By 1,500 Positions In Effort To Cut Annual Costs By Up To $125 Million
    The Vancouver-based company, which operates one of Canada's biggest telecommunications networks, provided few details about the downsizing except that many of the cuts include voluntary departures and early retirements.

    Telus To Cut Workforce By 1,500 Positions In Effort To Cut Annual Costs By Up To $125 Million

    New Liberal Government Reinstating Long-Form Census, But Won't Talk Penalties

    New Liberal Government Reinstating Long-Form Census, But Won't Talk Penalties
    Navdeep Bains, the minister of innovation, science and economic development, said the new government is focused on evidence-based decision-making over ideology.

    New Liberal Government Reinstating Long-Form Census, But Won't Talk Penalties

    Justin Trudeau Relaxes Conservative Control Of Diplomats, Urges Them To Engage

    Justin Trudeau Relaxes Conservative Control Of Diplomats, Urges Them To Engage
    Trudeau sent a letter Wednesday to the ambassadors and high commissioners of Canada's foreign missions telling them he and his cabinet will be relying on their judgment and insight to advance Canada's foreign policy goals.

    Justin Trudeau Relaxes Conservative Control Of Diplomats, Urges Them To Engage

    Saskatoon Children With Rare Disease To Have $500,000 Drug Covered By Province

    Saskatoon Children With Rare Disease To Have $500,000 Drug Covered By Province
    Muhammed Akhter says when he got the phone call from the health minister he had to ask the woman on the line three times to repeat what she was saying. He calls it "life-changing news."

    Saskatoon Children With Rare Disease To Have $500,000 Drug Covered By Province

    Newfoundland And Labrador On Verge Of Provincial Election Call For Nov. 30

    ST. JOHN'S, N.L. — Voters in Newfoundland and Labrador will go to the polls on Nov. 30 in a provincial election that was scheduled to formally start on Thursday.

    Newfoundland And Labrador On Verge Of Provincial Election Call For Nov. 30

    Ontario Reviewing Consumer Protections For Owners Of New Homes

    Ontario Reviewing Consumer Protections For Owners Of New Homes
    Ontario has appointed Douglas Cunningham, the former associate chief justice of the Ontario Superior Court, to review the Ontario New Home Warranties Plan Act and the Tarion Warranty Corporation.

    Ontario Reviewing Consumer Protections For Owners Of New Homes